“YOU HAVE KIDNEY DISEASE”

Written by: Alli, a 2014 National Kidney Walk Ambassador

Sorry everyone junior year has been hectic! I said I would talk about the modifications that you have to make to live your life to the fullest with kidney disease… so here it goes!

Being told “ YOU HAVE KIDNEY DISEASE” is the moment when your life changes forever. From there are on out you have to change your lease on life. I learned about all these big words like “glomerulsclerosis” and then came the medications. The most drastic change was having to take all of these drugs and not knowing what would happen or even why I had to take them. One thing that helped was knowing that I was in the hands of a very qualified nephrologist. A lot of people don’t even know where to start with how to modify their life so I suggest using kidney.org or anyone that you have connections to and of course, me!

Another modification that you will need to make is diet, some more modifications than others. I had to change sodium, potassium and dairy. I saw a nutritionist within the first month and it helped me greatly. The nutritionist I used was through my team of doctors that my nephrologist set up. WE ARE NOT ALONE. Your doctors will always be there for you. Also, you should use sodium girls YouTube account or use kidney.org for weekly ideas on recipes to create that are kidney friendly. However, even with all these modifications there are side effects especially depression and that is why I am here and the whole kidney community to make your day a little bit brighter with some words of wisdom.

There are 26 million of us and we all our family.  If you would like to speak to me personally please leave your email or a way for me to contact you and I would love to talk. Enjoy May and hope all the mother’s out there had a Happy Mother’s Day!

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Greetings from guest blogger Alli Young, a 2014 National Kidney Walk Ambassador!

Written by: Alli, a 2014 National Kidney Walk Ambassador

Hi everybody my name is Alli Young and I am from New Jersey! At the age of 14, I was diagnosed with Stage 3 Chronic Kidney Disease, specifically Focal Segmental Glomerulsclerosis (FSGS). I was misdiagnosed multiple times and because of that I have had a significant loss of kidney function. I was diagnosed at the beginning of my freshman year and while everyone was picking out his or her first day of school outfits, I was at the doctor’s office trying to figure out how to treat this disease that turned my life upside down. One thing that I have learned in the past two years is that kidney disease does not define me and that it only motivates me to be a better person.

For the past two and a half years I have been volunteering with the National Kidney Foundation. I have raised over $10,000 and formed my own team called Alli’s Army. I love to initiate new relationships with people and motivate them to live life to the fullest. Last year I was the Kids for Kidneys Captain and this year I am the Ambassador of the National Kidney Foundation. Inspiration can only come from within and even when I am having a bad day I turn it around by putting smiles on everyone’s faces. Enough about me what you should really know is that there is a life beyond kidney disease and any disease as a matter of fact. When life gives you lemons you make bright yellow lemonade.

Every week I will be blogging about a different topic on kidney disease and if you have any questions or just want to talk I will always be here for you. Thanks for reading and I can’t wait to learn about your journey and educate you about kidney disease!! Next weeks topic will be about how kidney disease changes your life and what modifications you will have to make to live your life the way you want to live it.

A healthy attitude is contagious but don’t wait to catch it from others. Be a carrier.”  –Tom Stoppard