Written by Danny, a 2014 Kidney Walk National Ambassador.
I’m Daniel, twelve years old, born in a suburb of Detroit, Michigan and I have Chronic Kidney Disease.
Even before I was born, the doctors saw a potential problem with my right kidney during a routine ultrasound. My mom had to have a lot of ultrasounds so the doctors could keep an eye on things. Right after I was born, the doctors checked me out, did an ultrasound on me, and gave me the all clear. Everyone thought I was healthy and had two normal kidneys. That lasted for seven weeks.
It turns out that the tube extending from my right kidney to my bladder was bent – really bent. Tied up in knots kind of bent. As a result, my right kidney didn’t work at all and the damage had an effect on my left kidney as well. My left kidney is just too small to do all the work it is going to need to do to keep me healthy as I grow. I have to keep a habit of drinking more than the average amount of water per day, and I go to the University of Michigan Children’s Hospital for blood draws and clinic visits every few months. I also get an injection every evening of growth hormones so that I will grow like other kids. I know that I am going to need a new kidney one day but my parents are making sure that I get to have a normal childhood – I even went to sleep away camp for an entire month! The nurses took great care of me and, except for the contact sports I got to participate in all the activities.
Shortly after the diagnosis, my mother learned of the National Kidney Foundation, and its local branch, the National Kidney Foundation of Michigan. I have taken part in the Detroit Kidney Walk since the age of three but only began fundraising outside of my immediate family three years ago – my parents thought it was importan t that I understand the value of money before asking others to donate. In the last few years my family, friends, and even strangers have helped me raise over $25,000 to help kids and adults like me everywhere.
Stay tuned in for more blog posts written by Danny throughout the the year.