Written by: Alli, a 2014 National Kidney Walk Ambassador
Hi everybody my name is Alli Young and I am from New Jersey! At the age of 14, I was diagnosed with Stage 3 Chronic Kidney Disease, specifically Focal Segmental Glomerulsclerosis (FSGS). I was misdiagnosed multiple times and because of that I have had a significant loss of kidney function. I was diagnosed at the beginning of my freshman year and while everyone was picking out his or her first day of school outfits, I was at the doctor’s office trying to figure out how to treat this disease that turned my life upside down. One thing that I have learned in the past two years is that kidney disease does not define me and that it only motivates me to be a better person.
For the past two and a half years I have been volunteering with the National Kidney Foundation. I have raised over $10,000 and formed my own team called Alli’s Army. I love to initiate new relationships with people and motivate them to live life to the fullest. Last year I was the Kids for Kidneys Captain and this year I am the Ambassador of the National Kidney Foundation. Inspiration can only come from within and even when I am having a bad day I turn it around by putting smiles on everyone’s faces. Enough about me what you should really know is that there is a life beyond kidney disease and any disease as a matter of fact. When life gives you lemons you make bright yellow lemonade.
Every week I will be blogging about a different topic on kidney disease and if you have any questions or just want to talk I will always be here for you. Thanks for reading and I can’t wait to learn about your journey and educate you about kidney disease!! Next weeks topic will be about how kidney disease changes your life and what modifications you will have to make to live your life the way you want to live it.